Delivery of healthcare is critically dependent on access to data, however much of this data resides across many data repositories and organizations, and is often highly protected and private.
The Environmental Drivers
Restructuring of the Health System (world wide) to meet the demands of ageing populations (major economic impact)
Funding agencies driving multi-disciplinary research initiatives and solutions to healthcare priorities and data sharing needs
Increasing pace of growth of the scientific knowledge base (e.g. genomics data) increased need for linking data across disciplines
Development and application of high-cost medical technologies and need for Cost/benefit analyses (global benchmarking)
Declining availability of specialist skills and thus improving productivity through advanced systems becomes a priority
Private-sector healthcare providers taking over more routine procedures from Public providers and data access issues
How do we answer a Health Query?
Identification of the real question
Design of the study
Collection of the data
Analysis of the data
How Easy is Health Data Incorporation into various Modules?
There are a hell lot of issues, like:
Patient Data is usually spread across several databases like:
Pathology and Pharmaceuticals databases
Absence of a common person identifier
Privacy and Security
• Patient concerns
• Legislative requirements
• Data ownership concerns
No way to easily manage access to data in multiple databases
• Involves significant time and manual handling of data between computer systems
Data quality and consistency
• Data entry errors
• Non-standard coding and formats
Current Efforts and Practices
Data Linkage Units
National Data Network (NDN)
Various software solutions
Electronic Health Records
Clinical Information Systems
Current Technological Breakthroughs and Advances
Web Services
XML
Ontology
Discipline based
Need domain expertise to define the ontology of data sources and fields
Removes ambiguity and provides base line agreement on terms
Integration of heterogeneous data sources
Wrapper technology allows any data or service to be incorporated
Query optimizer
Targeted at life sciences
SRS
Flat File, XML and relational data base
Any command line analysis tool
Integrates over 1000 data sources and 250 analysis tools
Wide usage in biotech and pharmaceutical industries
Meta data driven approach
Web service based with powerful web service API and web interface
Use Meta data to describe
How data elements interact with the system
The behavior of data
Relationship between data
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